“Emotionally I’m a celebrity” That’s a line from an Iggy Pop song, but I sorta love it and I think it’s a fair descriptor of how I feel sometimes – although, yes, I DO understand that ol’ Iggy is takin’ the piss over a generation of punk rockers who don’t understand punk rock.
Maybe it speaks to you, too.
Maybe it doesn’t, and I’m emotionally dysregulated… but are we not all the main characters in our own stories?
Once upon a time, they used to call artists, (and by extension, popular artists) (and also by extension, rich weirdos who were often popular artists beck before being ‘famous for being famous’ was a vocation) ‘eccentric.’ That’s a term I haven’t heard used in a long time; likely since medical science has come up with actual diagnoses for these disabilities.
Yes, disabilities – and that’s an important distinction.
These people who operated in these ways fell under the umbrella – or; nore accurately, were swept under the rug – of ‘eccentric‘ which was a catch-all term for ‘a little different but ultimately harmless‘ primarily because they saw beauty in things that their contemporaries didn’t. These folks were odd. They’d simultaneously procrastinate and fixate. They’d be uncredited authorities on obscure topics. They acted out sometimes… or became reclusive. They showed up late and left early. They wore sunglasses indoors and dressed differently. they were called ‘weird’ ‘gifted’ ‘wild’ and my personal favorite: ‘talented’. They flocked together. They had a hard time maintaining employment. They drove fast. They lived a high-risk lifestyle. And there were countless other symptoms… and unfortunately for those who lived their lives before these diagnoses were available – they self medicated their disabilities in lieu of actual help.
There’s that word again. Disabilities.
Anyway,
… all of those things are still true.
… and have been true for me along the way.
The importance of that distinction comes with some controversy within the community, I suppose, but I’m beginning to think that controversy is regional – as in, if you live in a place where there’s no government funded help available and you’ve received an adult diagnosis after developing your own coping methods over the course of your life – you probably don’t want to be labeled as a ‘disabled person.’
However; if you do live in a place where there’s government-funded help and tax breaks, that designation is probably a blessing.
But if you live in a place, as I do, where; although you were diagnosed as an adult, and have some (healthy) coping mechanisms (after dispelling your unhealthy ones on your own, the hard way), and the governing body in your region DOES provide help and support, but the current folks in power are actively trying to take money out of the pockets of disabled people, it’s a VERY important designation.
Me? Yeah, I’m ultimately fine. I made it this far, didn’t I?
I’m pretty high-functioning ADHD and ASD (AuDHD, technically).
But that doesn’t mean I have a spare $5,000.00 kicking around for testing (regardless of the outcome) as well as $150/month for medication and an untold fortune for ongoing therapy.
How about folks who are not quite so high-functioning?
Or folks who are dealing with a whole bunch more than I am?
These disability designations are crucial.
So my job… my role here… is to highlight the fact that these people are all around you. This is why I’ve decided to be open about this, and not to be embarrased about it.
Because April 2nd was World Autism Awareness Day… (and yes, the notion of posting this on a thursday was really problematic for me due to my Saturday morning ritual… and my… ASD… struggled with that) and there will be all kinds of cool information being posted and shared all month that I hope you will take in.
Thanks everyone.
The Iggy Pop quote is from the song Neo Punk, from his most recent album “Every Loser” which is a great record from front to back and the fact that he put out such a barn burner of an album at 75 years old should give you as much hope as it gives me.
Another line from that song is “my hair is blue, and my prescription, too” but both my prescription AND my hair are grey. Not joking.
The Conscious Pilgrim 